JULY 2016

*Name: Laura

Have you been affected by Ciguatera Poisoning?: Yes, I have had ciguatera poisoning
How did you hear about us?: Social Network
Tell us your story: Hi! I got ciguatera two months ago. I am from Dominican Republic and ate ceviche in and hotel while on vacaction. The next day I woke up feeling weak and shaking a lot, but I never imagined that Ciguatera existed and how I didn´t have any gastro issues I never went to the ER. After a week of getting back to the city I felt lightheaded and very weak, how I normally have a mild case of dysatonimia ( in which the autonomic nervous system (ANS) does not work correctly) I thought I was just weak because of that. But, I felt very strange even though I forced my body to work. I work with three year olds, so I was permanently active. Two weeks went by feeling weak and with a burning sensation and itch in my body, and I woke up one night with terriblet chills, tachicardia, burning sensation in my body which made me go to the ER, thinking I was having a heart attack, but they found nothing wrong with me and told me it was just a panic attack due to stress. After horrible days and nights without going to work, a doctor finally told me it was ciguatera and that it affected my nervous system worse due to my dysautonomia. I get burning sensations, chills, my body feels totally heavy when I stand and I get stomah cramps (not being able to eat or digest properly). It sometimes makes it even hard to breathe. I have only eaten soup, mash potatoes and small pieces of bread in the last two months. Does anyone know what can I take for my terrible stomach cramps? Can Activated Charcoal work even after two months? I was starting to feel well and all of a sudden two days ago i havent been able to get out of bed with severe pain an stomach cramps! is there anything that can make it leave your body faster? Thank you!

Sorry for the delayed response I was on vacation for a couple of weeks and just now catching up. I hope your feeling much better by now, please let me know. Your case is very typical of people getting sick and not knowing what it is, then going to a doctor with all the symptoms and them not know what it is, panic attack due to stress, REALLY!!
I’m glad a doctor finally gave you the right diagnosis so you know what you have and can try to deal with it. I don’t know of any treatment that helps, nothing I tried over the months helped me with the symptoms and some things made symptoms worse. It affects people differently and the only thing unfortunately that I know of is time for the toxins to leave your body. If you come across anything that does ease the symptoms please let me know..